Events Calendar

Day 6 – It’s a journey…it’s a marathon

~ Joey P.

My husband, Joey Propst, suffered from two massive strokes in January
of this year at the age of 46. At the time the strokes happened we were unaware that Joey had any health problems, other than a cold that had caused a severe headache. We heard of the Triangle Aphasia Project (TAP) and Maura, the Executive Director, from speech therapists starting at the intensive care unit at Duke and then later while at WakeMed for acute Rehabilitation. The therapists at both locations explained Aphasia and Apraxia to me. It was all very overwhelming.

Joey joined TAP after beginning outpatient therapy. TAP has been
invaluable to Joey’s recovery. It has given him a place to go to work with others that have similar circumstances. Joey’s spirits have been bolstered by seeing others at TAP who have improved. The hope and support from TAP helps him believe that his reading, writing and speech will improve and that working his mind to create new pathways is important. He has gained confidence from attending the TAP sessions.

We are just finishing the first year of the long marathon called
recovery. I cannot imagine the year without TAP. We are so grateful that Maura is able to lead such a wonderful group to help people with Aphasia and Apraxia.

Day 5 – Expanding beyond the “Triangle”…

~ Kevin C.

As a speech-pathologist, I know the ingredients for successful aphasia recovery: offering different modes of intense treatment delivered over a long time, providing tools for clients and family members to communicate with each other, and offering emotional support to everyone affected by aphasia. We had excellent traditional speech therapy in Winston-Salem, beginning when a person first has a stroke extending into the outpatient setting. But I felt like there was a missing puzzle piece, bringing services and support into the community where people actually live and communicate. I reached out to Maura and found a partner whose passion and enthusiasm were only matched by her high expectations for what people with aphasia deserved.

Day 4 – She didn’t find the job, the job found her!

~ Jenny K.

My name is Jenny Kearney and I’ve been the office manager at TAP for about a year and a half. I can’t believe it’s been that long! When I started working at TAP, I had no experience with aphasia or even with nonprofits. I just knew that I wanted to work somewhere that felt like it was doing good things for the community, where I could be around people, and where I might be able to use my “jack of all trades, master at none” background to help out. Wow! Did I fall into something incredible!

From the moment I walked into the main office for my interview, TAP felt like home. The physical space was warm and inviting. Maura was energetic, joyful, filled with ideas, hope, and compassion for others, and was clearly very smart and creative. Her passion for her mission was palpable, her enthusiasm contagious. I got excited about what TAP was, who it was helping, and where it wanted to go before I even met the first client. I knew immediately that this was a place I wanted to be.

Day 3 – The Communicative Power of a Smile!

~ Joyce C.

From Sam – Joyce’s husband:
Joyce had her stroke in May 2011. TAP means a lot to her and to our family. Going to the TAP group helps her in so many ways. It has given her a safe space for being understood. TAP gives her the opportunity to improve herself while in a sense of community. She has gained friendships despite the social roadblocks her aphasia has brought. She has something to look forward to with all the smiles that go around! With the support of her TAP family and friends she finds the strength to never give up!

From Lina and Heather (Group Leaders):
Joyce always comes to group with smiles for everyone. Despite her communication barriers, she is eager to participate using whatever means she can. She accepts any and all communication challenges we throw her way and is proud to share them with her friends in the group.

We also can’t talk about Joyce without mentioning her husband Sam. He provides never-ending support for Joyce. He is a fixture of the TAP group as much as she is! He doesn’t just provide encouragement to Joyce, but he is always near by to step in and help the other group members as well. The Wednesday Raleigh group just wouldn’t be the same without these two!

Day 2 – From Volunteer to Client

~ Gail J.

I have so admired TAP since the early days of its conception and have been amazed at what has been accomplished and especially the courage and determination of the people who benefit from all of the help they get there. In the early days I was honored to volunteer with TAP helping raise money, attending various events, keeping the books and eventually serving on the board. I saw first hand how much TAP helps those dealing with aphasia through therapy but also establishing wonderful friendships with one another. I still remember so many people – Ray, Rachel – and many others – who I considered dear friends. I just never thought that I might need that help.

Day 1 – Keeping Pace (and Peace) with Primary Progressive Aphasia

~ Chris L. (written By Sarah L.)

Most people understand that aphasia generally is the loss of ability to understand or express speech; it’s an impairment of language. Aphasia results from damage or injury to the brain—in many instances, from a stroke. But did you know that there is a type of aphasia that is called Primary Progressive Aphasia (PPA)? Unlike other forms of aphasia, PPA is caused by a neurodegenerative disease—usually a subset of frontotemporal degeneration (FTD). And while aphasia can strike a person suddenly due to an event such as a brain injury or a stroke, PPA is different because it is stealthy and creeps up on a person over a number of years.This is what happened to my husband, Christopher Lannom.

Day 12 – Love and Understanding

Tom C (and his wife Donna)

My husband Thomas at age 61, suffered a massive left brain stroke (5/12/14). We were told by the doctors that he would not survive this stroke and then when he lived beyond the predicted three days, they said “ don’t expect anything from him, he will be nonfunctional”. Boy did he prove them wrong! Although he continues to recover, he does continue to RECOVER. I mention this because there is so much misinformation about survival and recovery from stokes. Words such as neuroplasticity didn’t exist years ago when I was in nursing school. Thomas continues to struggle with expressive and receptive aphasia and apraxia. He also has right arm paralysis and short term memory deficits.

We were introduced to TAP by the rehab hospital Speech Language Pathologists. They highly encouraged us to contact TAP after discharge from the hospital. I will never forget the first weeks, months Thomas attended TAP classes. At the beginning of class the Speech Language Pathologist went around the table and had each client in the group give their name and tell the group what condition caused their aphasia. Thomas struggled for over one year and one half to be able to say his first name. He now is able to state his name, cause of aphasia and then ask questions!

It is heart breaking to watch him struggle to speak at times though his thoughts are clear as a bell. The good news here is that TAP has provided us with tools to get those thoughts out! Whether it is a gesture, drawing a picture, writing words down, pointing to an object, we eventually are able to understand what he wants or is saying. TAP provides so much support for not only the client but the family as well. It provides a safe space for the clients with varying degrees of aphasia. Thomas continues to attend TAP 3-4 times a week. I have no doubt in my mind that TAP therapists as well as clients have been instrumental in his ongoing recovery.

Maura asked for the clients to share their journey “ in their own words”. When I asked Thomas to share some of his thoughts on the subject, he said “ Everybody looks at me with love and understanding, the TAP clients and teachers ( SLP’s)”. “ I feel the same way” about them!

Day 11 – A Long Way

My name is Joelle Rogers and I have been attending groups at the Triangle Aphasia Project for a year and a half. I had a stroke in May 2016. When I started at TAP, I didn’t know this organization would be an essential part of my recovery.

In the beginning, I was not talking much. My language and memory had pretty much gone offline. A critical part of my brain wasn’t working. TAP came at the right time! Maura knew how to engage me as a person with aphasia, not a person with an intellectual disability. She was so positive about my recovery, energizing, and smart. She met with my family members and gave us the solace we needed.

Along the way, TAP has been a home to me. Through it all – the groups, volunteering at Read and Feed this summer, the holiday gatherings – TAP provides learning, mutual support, social engagement, among other things. For example, I’m a member of the back-to-work group and plan to return to working as a mental health professional. Along with my speech therapy sessions, the TAP groups give me the opportunity to regain my verbal fluency and confidence. I’m working to improve my verbal skills so that I can treat clients, talk about my story, and empower people to do what they want to do, especially those with aphasia or diverse functioning.

I’m still recovering and have a long way to go. With TAP, I know I have the support of TAP friends, speech therapists, family members, and other people to help me on my path to recovery.

Day 10 – The Force That Is Maura

I had the good fortune to meet Maura and to be introduced to TAP after the very unfortunate event of her mother suffering a hemorrhagic stroke. I was a covering therapist at WakeMed and had an opportunity to do a home visit with Maura and Joanie as part of her discharge planning, and an amazing and lasting professional relationship was born. I felt like I had met my speech therapy mirror in terms of looking at the rehabilitation of a stroke survivor as something that is limitless, empowering and POSSIBLE!

When Josh and I opened STEPS for Recovery in 2012, Maura joined our practice to have the opportunity to see some private clients, in addition to her “full-time volunteer job” at TAP. The passion with which she approached the reacquisition of functional communication skills and the joy with which she passed that knowledge on to others was contagious. I don’t have to tell any of you reading this about the force that is Maura, but one person alone cannot make an organization. Maura facilitates but the group members and coaches have ownership. Thru participation they gain confidence, spread awareness, reduce stigma and bring attention to the needs and support of individuals with aphasia.

I have had the opportunity to attend many TAP events from the June Signature Events to TAP Talks, performances of the TAPTastics to the STRIDES for Speech 5K and ½ mile walk, and the thing that stands out the most to me about this organization is the sense of community among the participants and staff. It’s like a family. Everyone knows each other, their stories and their families. The level of support, encouragement and love for one another is like nothing I have ever seen in any other group setting. It transcends the structured group activities and extends into social engagements and support networks that extend far beyond the walls of TAP. There is a constant sense that we are all in this together and when an individual succeeds in reaching a goal, expressing a thought or idea or leaves the wheelchair in the car and walks into a group for the first time, the whole group is lifted together.

People WANT to go to TAP. They look forward to the groups and they schedule their other therapies and appointments around TAP activities. Because it is thru the groups, the accountability, the shared experiences and the collective encouragement that survivors find hope and success. The social aspect relieves isolation and boredom and provides purpose for communicative efforts. The supportive atmosphere provides a safe place to try new things, both from a communication standpoint and sometimes even a physical activity. Every week I get a text, a video or a story about a physical accomplishment while attending a TAP group – walking without a device, sitting in a “regular” chair instead of a wheelchair, leaving the wheelchair in the car all together… TAP is an environment where individuals feel confident and competent and these are crucial components of successful and continued recovery.

TAP is committed to making programming and resources available to all individuals with aphasia and other stroke and brain injury survivors alike. There is no way to calculate the value of this resource to this community but it does not come without some cost. STEPS for Recovery has been and continues to be a regular supporter of TAP because we see every day that value of this program on the lives and recovery of our patients. Josh and I hope that you too will recognize and take advantage of the opportunity make a positive impact on the lives of so many with your financial support. Give the gift of HOPE this holiday season!

Day 9 – Finding ways to communicate

Lorre H (with assistance from Group Leaders Lina and Heather)

Lorre is one of the Wednesday WakeMed’s communication group longest members – having come for almost 5 years! When asked about what it was like 6 years ago when she first had a stroke, she says, “I couldn’t talk or anything at all. It was awful.”

Why does she continue to come to TAP? “I like to see everybody and work on my talking. I love to see when others get better. like that a lot.”

Although Lorre struggles to get words out sometimes, she quickly will try and write some words down to help her get her point across. Her selfless nature helps boost the morale of the group (and of her friends outside TAP who can’t drive so she volunteers to bring them places!). She is fiercely independent and refuses to give up when things get tough.

She also challenges herself by participating in Book Club.Reading was something she did a lot of prior to her stroke but struggled with afterwards. What does she think the best part is? “Oh I like that every book is so different. I like to talk to others about it. Nice to get back into it.”

Day 8 – 150% better!

David H

I had a stroke because of an aneurysm in 2016. I can’t hardly remember anything that happened. I was working at the time. After the hospital, my friends gave me a lot of help but I didn’t get normal therapy. I went to live with my dad who took care of things. I started coming to the TAP group in the summer with my dad. I couldn’t really talk then. My dad died in October [2016]. It’s ok now and my feelings are getting better.

I was living on my own in VA. My friends and my sister all live far from me. I kept coming to the group. In January [2017] TAP figured out a way I could get therapy and I have been getting better since.

I don’t know why it works. I am definitely better coming on Mondays [to the Winston-Salem TAP group]. A whole year ago, I hardly couldn’t talk. The people are nice and always help me with stuff I bring up.

It’s a mess but you’ve got to keep trying.

What other group members say about David:
“You come here every Monday and say ‘this is what I am figuring out’”
“150% better”
“I think you have limited opportunities to talk. I think it is good you come here.”
“He’s excitable, talking with aphasia!”
“When he started, he had limited vocabulary. Now he has a broader vocabulary. You are very good at talking now.”

Day 7 – TAP is a second home!

Don B

When I am at TAPS I feel at home. I feel like there are other people just like me that I can completely relate to and talk with on the same level. There is a special commonality and comradery that I feel with my TAPS friends and I have developed some special friendships with them over the past two years. I really enjoy spending time with them and their spouses and have spent many wonderful evenings socializing and getting to know them better outside of TAPS as well.

I especially enjoy the many various activities that TAPS has to offer each week like our singing group, harmonica playing, group discussions, writing classes and performing. I really enjoyed the recent TAPS fundraiser where I was cheered on as I crossed the finish line~ that meant allot to me. Our trip to the Legislature this summer where we met our state representatives and lobbied for TAPS was a very memorable and fun time as well!

There is really so much to say about what TAPS means to me…TAPS has helped me regain so much of my ability to talk and enabled me to better express what I want to say to those around me with confidence. In summary, TAPS has become a very big part of my life and where I go each week to find acceptance, encouragement and hope. I love all of the people at TAPS and all that it means to me.~